Today i have my old patient a case of mentally challenge and scoliosis.She was able to walk but not in the normal pattern..,due to the bad and worsening scoliosis she undergone operation and since then she can't walk..When i saw her in my clinic 5 month ago i still remember the tears of the mother and unexplained sadness as she can't walk anymore..but what i look there is potential and with aggressive therapy session by my therapist the light seem to be brighter..and with continous pray and support by the family now during the clinic session i found she can walk with a walking frame.....Now the tears of joy and the smile seen in her mother face.Moral of the story for parents with special children we need to support our children,motivate them and continous pray and hope..Istiqamah is the best for sure Allah will heard us.I belief in surah Al Insyirah (kelapangan) as Allah promise us selepas kesusahan datang kesenangan,selepas kesusahan datang kelapangan..Belief in Allah and with good work Insyallah....
mama Luqman
Thursday, January 29, 2009
Saturday, January 17, 2009
Parents support group
Today when i scroll on the topic autisma in Malaysia ,i found one blog of a parents with autism.2 of his son is having autisme..surelly it is a sad feelings but what the father really concern is the future of this autistic children..in Malaysia there is no such things of proper institutions for this children and institutions for disabled children is very bad under welfare department..once i visited rumah kanak-kanak terencat akal in kuala kubu ..it is really sad and the staff seems over exhausted as the no of children to staff ratio is very unreasonable..maybe parents of autisme should sit together and think about this..if i am still strong at my elderly years and as a professional in medical field i will open an institutions for my son and welcome the others but this need support and courage..may Allah givew me courage and health so my dreams will come true..and hopefully there will be a strong parents support group that think about this.till then
mama luqman
mama luqman
Thursday, January 15, 2009
Be a good BOSS
It is easy to be a boss.I agree with that but to be a boss means to be a leader..therefore good example must be shown furthermore concern on your staff problems is very important.
I have problem with this..having special son i need more time ...sending my son to school ,to therapy it is not easy and i don"t choose these but it is an AMANAH from Allah having this children totally pure white and innocent and they make you smile ........
Sadly my boss did not understand this..today because of the leave i took yesterday she started to grumble and yelling...
But at the end of the day i realized who care about your problems the boss only care her problems...it is you and don't bother what your boss say..maybe you should yell back .....
mama luqman
I have problem with this..having special son i need more time ...sending my son to school ,to therapy it is not easy and i don"t choose these but it is an AMANAH from Allah having this children totally pure white and innocent and they make you smile ........
Sadly my boss did not understand this..today because of the leave i took yesterday she started to grumble and yelling...
But at the end of the day i realized who care about your problems the boss only care her problems...it is you and don't bother what your boss say..maybe you should yell back .....
mama luqman
Tuesday, January 13, 2009
Allowance for OKU student
Today i need to take leave because of luqman therapy day..i just can't manage working and running to pick him up at lunch time from HKL back to Shah Alam and sending to Setiawangsa...I guess because reaching 40's your level of energy and endurance are very much reduce..So with this oppurtunity on leave i meet my son teacher in his Sekolah Kebangsaan.My son attended special class...I was just asking on luqman improvement and thanks to Allah there was a positive answer ...furthermore i inform the teacher on the allowance RM 600 that was bank in for luqman account.The teacher said many of the parents dissatified on the amount 50/month as the government on the 2008 budget talk was saying the allowance increase to 150/month..As usual i am a government officer i accept what is given and agree there is possibility the government need time to implement it especially related to money..but the teacher claim some of the parents really scold her and very mad on the promise governmenet made.....but the moral of the story was, as long we get help for our children ..Alhamdulillah and we must be patientce.
Asking on future autistic children after completed secondary school ..there is none.
Therefore i will keep in mind ,if i have the courage and opportunity i will debate this matter with ministry of health n ministry of education..but till now i am so busy and not working today i still have to prepare educational talk for my staff.
mama luqman
Asking on future autistic children after completed secondary school ..there is none.
Therefore i will keep in mind ,if i have the courage and opportunity i will debate this matter with ministry of health n ministry of education..but till now i am so busy and not working today i still have to prepare educational talk for my staff.
mama luqman
Sunday, January 11, 2009
Birthday Party
Today is Sunday and my neighbour ,invited my family for a birthday party.The place is KFC extreme park, a new place.Luqman was so excited as the music is loud and all the song will make him shake his body.He behave well and eat the nugget..very comfortable sitting while watching the other children dancing,jumping following the music.
Each birthday party that i bring luqman along ,for sure make me sad..he just can't behave as the other children despite adequate physical look.That is autism ,sometimes people never understand on their condition as they look well..but on the second thought i thank Allah for what Luqman have as he is well.... only the behaviour and speech issues.
Now luqman attended behaviour therapy 3x weekly and hoping there will be positive outcome.
May Allah help me n my son.
mama luqman
Each birthday party that i bring luqman along ,for sure make me sad..he just can't behave as the other children despite adequate physical look.That is autism ,sometimes people never understand on their condition as they look well..but on the second thought i thank Allah for what Luqman have as he is well.... only the behaviour and speech issues.
Now luqman attended behaviour therapy 3x weekly and hoping there will be positive outcome.
May Allah help me n my son.
mama luqman
Monday, January 5, 2009
Day with frustration
People should be more aware of what disabled children are ?,facilitating their live to be easier not more miserable.But sadly nobody really care..not the teacher,not the government unless you have them in your family.Unless this special son is your lovely and sunshine son.
Today suppose to be a happy day for all student as this is the first day of schooling for year 2009,but it become the most frustrated day where discrimination for disabled children can be seen.
My son attended special class in this normal school with my maid waiting almost every day..last year there was a room for the carer but this year it has been change to a store..with the chair ,door and all wooden material inside the room..why nobody really bother about special children ,they don t eat as normal child,they don t speak the same language ..but please give space for the carer to help them.If they join the other children surely the others will look at him as weird as a mad person...i have heard my nephew saying my handsome luqman as "gila" so what do you expect when they are in larger group...therefore a privacy room for them to eat with the carer help is important...
I am so sad as no proper toilet for special children..they still need to jump the high stairs squatting toilet ..
sad.sad,sad
mama luqman
Today suppose to be a happy day for all student as this is the first day of schooling for year 2009,but it become the most frustrated day where discrimination for disabled children can be seen.
My son attended special class in this normal school with my maid waiting almost every day..last year there was a room for the carer but this year it has been change to a store..with the chair ,door and all wooden material inside the room..why nobody really bother about special children ,they don t eat as normal child,they don t speak the same language ..but please give space for the carer to help them.If they join the other children surely the others will look at him as weird as a mad person...i have heard my nephew saying my handsome luqman as "gila" so what do you expect when they are in larger group...therefore a privacy room for them to eat with the carer help is important...
I am so sad as no proper toilet for special children..they still need to jump the high stairs squatting toilet ..
sad.sad,sad
mama luqman
Thursday, January 1, 2009
2009 VISION FOR MAMA SPECIAL SON
An Approach To Educating Child With Autism
It is in the manner of perception that we can either work our way out of a problem or say that our trip just ended. Many times have we experienced giving up and say in the end that if we only held tight to the rope then we could have risen to victory.
Autism is just the same. Superficially, we may perceive that we cannot find our way to work the problem of our child out. But there are endless possibilities, if only you believe.
It is the way we think that will affect our actions to things. It is the approach we use in determining what will work for us and what will not. It all lies in patience and faith in whatever we do. Just be patient in waiting what truly awaits your child and you. Just be patient and you will find what truly troubles your son or your daughter. Just be patient and your child will be the one to tell you the cure for his or her condition.
Educating a child with autism is deemed next to impossible. If you as a parent believe in that too, you will find that your child’s case is an impossible to handle problem. A child with autism can learn, only in different manners. Your trip cant be over when he cant understand a word you say or he doesn’t get the meaning of what is an “a” or “ba”. Somehow, your role is to find the ways by which he may easily catch up with things.
He learns at his own pace and at his own time. You can’t hasten him to ripen when his time hasn’t come yet. You have to be patient and really take him to the step-by-step manner of educating him. You can’t just say to him things at one time and expect that they already have registered in his mind. If “practice makes perfect idea is true” then this time, believe in it. Your methods on educating your child may not be perfect or the results may not yield out perfectly but at least, the little things you have done to help him learn will make his life a bit more meaningful.
If it is behavior that you are dealing with, then it is best that you modify your behavior too. It takes courage to do just that since we are already oriented with the world of reason. Helping your child would mean defying what is normal. Act childish if you must. That way, you can better communicate with your child.
There is no standard approach to educating children with autism. After all, each child with autism displays a behavior different from that, which is shown by another. The spectrum is too wide that is why there is no way to categorize children displaying autistic features. Nonetheless, it is you who know your child best. You may not know the nature of his sufferings exactly but the compassion you have and your commitment to love will spar you to take your child to newer heights of learning.
He can’t forever stay with learning ABC’s or 123s. Somehow, he has to learn better. But this doesn’t imply that you have to force him to learn.
As you might have concluded by now, a child with autism does not learn in ways similar to that of normal children. This is inevitable since their brain works in ways dissimilar with the normal brain. Add to this the fact that they are impaired with certain behaviors that are crucial in proper learning. Before you can truly go deep to their brain, you have to eliminate barriers such as compulsive and repetitive behaviors that often go beyond hurting their own bodies. (Remember though that they have lesser sensitivity to pain and this would not stop them from banging their heads on the floor or biting their arms 10 minutes straight).
Parent, just believe and ask for the Creator to make miracles for your precious child. And you’ll see, things will go to their proper places when their time comes.
reading this article give inspiration and hope for me..never give up for no matter what the future will be.
mama luqman
It is in the manner of perception that we can either work our way out of a problem or say that our trip just ended. Many times have we experienced giving up and say in the end that if we only held tight to the rope then we could have risen to victory.
Autism is just the same. Superficially, we may perceive that we cannot find our way to work the problem of our child out. But there are endless possibilities, if only you believe.
It is the way we think that will affect our actions to things. It is the approach we use in determining what will work for us and what will not. It all lies in patience and faith in whatever we do. Just be patient in waiting what truly awaits your child and you. Just be patient and you will find what truly troubles your son or your daughter. Just be patient and your child will be the one to tell you the cure for his or her condition.
Educating a child with autism is deemed next to impossible. If you as a parent believe in that too, you will find that your child’s case is an impossible to handle problem. A child with autism can learn, only in different manners. Your trip cant be over when he cant understand a word you say or he doesn’t get the meaning of what is an “a” or “ba”. Somehow, your role is to find the ways by which he may easily catch up with things.
He learns at his own pace and at his own time. You can’t hasten him to ripen when his time hasn’t come yet. You have to be patient and really take him to the step-by-step manner of educating him. You can’t just say to him things at one time and expect that they already have registered in his mind. If “practice makes perfect idea is true” then this time, believe in it. Your methods on educating your child may not be perfect or the results may not yield out perfectly but at least, the little things you have done to help him learn will make his life a bit more meaningful.
If it is behavior that you are dealing with, then it is best that you modify your behavior too. It takes courage to do just that since we are already oriented with the world of reason. Helping your child would mean defying what is normal. Act childish if you must. That way, you can better communicate with your child.
There is no standard approach to educating children with autism. After all, each child with autism displays a behavior different from that, which is shown by another. The spectrum is too wide that is why there is no way to categorize children displaying autistic features. Nonetheless, it is you who know your child best. You may not know the nature of his sufferings exactly but the compassion you have and your commitment to love will spar you to take your child to newer heights of learning.
He can’t forever stay with learning ABC’s or 123s. Somehow, he has to learn better. But this doesn’t imply that you have to force him to learn.
As you might have concluded by now, a child with autism does not learn in ways similar to that of normal children. This is inevitable since their brain works in ways dissimilar with the normal brain. Add to this the fact that they are impaired with certain behaviors that are crucial in proper learning. Before you can truly go deep to their brain, you have to eliminate barriers such as compulsive and repetitive behaviors that often go beyond hurting their own bodies. (Remember though that they have lesser sensitivity to pain and this would not stop them from banging their heads on the floor or biting their arms 10 minutes straight).
Parent, just believe and ask for the Creator to make miracles for your precious child. And you’ll see, things will go to their proper places when their time comes.
reading this article give inspiration and hope for me..never give up for no matter what the future will be.
mama luqman
parents love
Today is the first day of year 2009.Today is a public holiday therefore life seem to be cool everywhere.There are not many car on the road and easily you can go shopping..but today i don't have any specific programs ..maybe just spending time with my lovely children.
today i went to my eldest brother house and after ringing the door bell his maid show her face and open the big door.but to my surprise a few minutes later she was shouting calling akmal my brother youngest son..she seem so worried calling repeatedly akmal,akmal ,,,,,,,,,,,
my brother was also so shock ,panic run all over the house searching for akmal..but after few minutes the maid found akmal is just at the corner ..he refuse to say any words..
Moral of the story is how precious is our children..i can"t imagine if we do loss them,
i cant imagine sharlinie parents grief of loosing her.
All parents love their children..and with the hope they will also love us oneday.
Now at the age of 40,having kids growing i realized how our parents struggle during our early days with my father earning only 400 /month and my mother is just a housewife.
I love my emak and abah .....hoping my kids will also love me.
My daughter sometimes say i love my special son more compare to them but deep in my heart my love is the same...just that as he is mama special son you think more about him especially on his future ....
To my daughter i love both of you just as your handsome brother.
mama luqman
today i went to my eldest brother house and after ringing the door bell his maid show her face and open the big door.but to my surprise a few minutes later she was shouting calling akmal my brother youngest son..she seem so worried calling repeatedly akmal,akmal ,,,,,,,,,,,
my brother was also so shock ,panic run all over the house searching for akmal..but after few minutes the maid found akmal is just at the corner ..he refuse to say any words..
Moral of the story is how precious is our children..i can"t imagine if we do loss them,
i cant imagine sharlinie parents grief of loosing her.
All parents love their children..and with the hope they will also love us oneday.
Now at the age of 40,having kids growing i realized how our parents struggle during our early days with my father earning only 400 /month and my mother is just a housewife.
I love my emak and abah .....hoping my kids will also love me.
My daughter sometimes say i love my special son more compare to them but deep in my heart my love is the same...just that as he is mama special son you think more about him especially on his future ....
To my daughter i love both of you just as your handsome brother.
mama luqman
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